Useful links
We want our website to be the best possible resource it
can be. If you have found any interesting links that you would like
to see here, please email Jo Webb and
we can include them.
About
Face International
About Face have three objectives: to empower, encourage and
educate. They aim to facilitate support, resources and public
awareness to improve the experiences of those living with facial
differences
Birthmarks.com
A useful website for information about vascular and pigmented
birthmarks, supporting those whose lives are affected by birthmarks
is offered through a free, private newsgroup with an international
membership.
British Association of Dermatologists
This website provides information about the skin and skin diseases
and contains an information sheet on strawberry marks and port wine
stains.
British Association of Skin Camouflage
The BASC continues to promote, support and further the remedial
techniques of camouflage, helping patients to face the world with
confidence.
Contact a Family
Contact a Family (CaF) is the only UK charity that provides
support and advice to parents whatever the medical condition of
their child. CaF offers a free helpline for parents of children
with a disability or medical condition: 0808 808 3555.
Changing Faces
Changing Faces is registered charity providing free help, support
and information for children (and their parents) and adults who
have any form of disfigurement. The aim is to build effective
coping strategies and self-confidence. It also works with
healthcare professionals, schools and others to promote awareness
about disfigurement and its effects.
Cystic Hygroma and Lymphangioma Support
Group
A non-profit organisation to support children, their parents and
adults with lymphatic malformations (cystic hygromas or
lymphangiomas).
Dermnet NZ
The New Zealand Dermatological Society Incorporated. This
website offers comprehensive information about dermatological
conditions. The sitemap is particularly useful as it provides an
extensive alphabetical list of skin conditions including many
birthmark types.
Disfigurement Guidance Centre
The Disfigurement Guidance Centre is a charitable organisation
which provides information and support for disfigured people.
Facing Forward
A US-based organisation helping individuals with congenital or
acquired visible differences cope with staring and build their
confidence.
Great Ormond Street Hospital
Great Ormond Street's mission is to improve the health of
children by being the foremost centre of excellence in Europe for
specialist paediatric services and for research, evaluation and
education in child health.
iFACE
Changing Faces also run a separate website focusing on young
people aged 11-21 who are dealing with disfigurement of the face or
body, from any cause.
James Cook University
Hospital
James Cook University Hospital has a vascular birthmark clinic - a
multi-disciplinary clinic supported by a group of specialists with
specific expertise in the treatment of vascular birthmarks or
monitoring of safety in patients undergoing bleomycin
treatment.
Let's Face It Support Network
An international support network for people with facial
disfigurement, their families, friends and professionals.
Outlook
Outlook is a NHS Service offering support and help for people of
all ages who are coming to terms with a different or unusual
appearance or a disfigurement.
Patient UK
A directory of UK websites that provide information on health,
disease and illness.
Proteus Family Network
The Proteus Family Network UK welcomes families affected by
Proteus Syndrome and associated conditions.
Skin Camouflage Network
The Skin Camouflage Network has established a nationwide directory
of professionally qualified members from medical, beauty therapy,
Red Cross and academic backgrounds whose services are available
both through the National Health Service and privately.
Sturge-Weber Foundation UK
The Sturge-Weber Foundation UK is a voluntary support group
for families and adult sufferers affected by Sturge-Weber
syndrome.
Vascular Birthmark Institute New York
(VBINY)
Offers comprehensive care for the diagnosis, treatment,
management, and research of all vascular malformations
(birthmarks).