Member stories

Here are just a few stories from our members.

If you have provided your story back in 2010/11 but do not see it here, please can you get in touch with Jo Webb. If you'd like to add your story, please use our online form

• Miles' story

  Miles was born with a congenital melanocytic naevus (CMN)
  Read Miles' story

• Lizzie's story

  Lizzie was born with a nasal tip haemangioma
  Read Lizzie's story

• Jessica's story

  At 4 weeks old Jessica developed a large haemangioma in her cheek
  Read Jessica's story

• Elise's story

  Elise developed a haemangioma and was treated with Timolol
  Read Elise's story

• Martha's story

  Martha was born in 2009 and developed a subglottic haemangioma
  Read Martha's story

• Dani's story

  Dani is 36 and has a capillary malformation (port wine stain)
  Read Dani's story

• Emily's story

  Emily was born with a capillary malformation (port wine stain) on her right arm
  Read Emily's story

• Morgan's story

  Morgan was born with glomovenous malformations
  Read Morgan's story

• Skye's story

  Skye developed a facial and sub-glottic haemangioma
  Read Skye's story

• Chloe's story

  Chloe was born in 2007 and developed a large haemangioma
  Read Chloe's story

• Freya's story

  Freya was born in 2012 with a haemangioma on her hand and wrist.
  Read Freya's story

• Andrew's story

  Andrew was born with a capillary malformation (port wine stain) on his right cheek
  Read Andrew's story

• Benjamin's story

  Benjamin was born with a venous malformation on his left cheek
  Read Benjamin's story

• Christopher's story

  Christopher has a capillary malformation (port wine stain)
  Read Christopher's story

• Lilah's story

  Lilah was born with a venous malformation.
  Read Lilah's story