Member's Stories
Amba's Journey
My name is Amba, and I'm from Lincolnshire. I was born with a rare genetic condition linked to the GNA11 gene, resulting in extensive vascular birthmarks that cover my body…
Rebecca's story
I’m sharing my story because our relationship with our skin is rarely a straight line. For me, it has been a lifelong journey of navigating the space between deep confidence…
Lola's Hemangioma (Strawberry mark)
My daughter Lola is three-years-old. In the few days after she was born, we started to notice some redness around her ear and chin, and under her neck. At first,…
Noah’s PWS Birthmark Journey
Noah is a twin and was born via c-section in 2020. His birthmark wasn’t noticed by us immediately, but was very apparent when the paediatrician came over to carry out…
Lucie’s birthmark journey – mixed Hemangioma.
Lucie has a mixed hemangioma on her forehead which developed in the first couple of months after birth. Lucie was born with no birthmarks that we could see initially. It…